- Ryan White Care Act
The Ryan White Comprehensive AIDS Resources Emergency (CARE) Act (Ryan White Care Act, Ryan White, USStatute|101|381|104|576|1990|08|18) was an Act of the
U.S. Congressnamed in honor of Ryan White, an Indiana teenagerwho contracted AIDSthrough a tainted hemophiliatreatment in 1984, and was expelled from school because of the disease. White became a well-known advocatefor AIDS researchand awareness, until his death on April 8, 1990.Cite news | title = Ryan White Dies of AIDS at 18; His Struggle Helped Pierce Myths | date = 1990-04-09 | author = Dirk Johnson | work = The New York Times]
The act is the
United States's largest federally funded program for people living with HIV/ AIDS. The act sought funding to improve availability of care for low-income, uninsured and under-insured victims of AIDS and their families.
The act passed in the
United States House of Representativesby a votefor 402 to 4.
Unlike Medicare or
Medicaid, Ryan White programs are "payer of last resort," which fund treatment when no other resources are available. As AIDS has spread, the funding of the program has increased. In 1991, the first year funds were appropriated, around US$220 millionwere spent; by the early 2000s, this number had almost increased 10-fold. The Ryan White Care Act was reauthorized in 1996, 2000and 2006. The program provides some level of care for around 500,000 people a yearand, in 2004, provided funds to 2,567 organizations. The Ryan White programs also fund local and State primary medical care providers, support services, healthcare provider training programs, and provide technical assistance to such organizations.Cite web | url = http://hab.hrsa.gov/history.htm | title = The Ryan White HIV/AIDS Program | accessdate = 2007-09-11 | work = Health Resources and Services Administration, HHS]
In fiscal year 2005, federal funding for the Ryan White Care Act was $2.1 billion. As of 2005, roughly one third of this money went to the
AIDS Drug Assistance Programs(ADAP) which provides drugs for 30 percent of HIV-infected patients. [ [http://www.kff.org/hivaids/upload/1584_09.pdf AIDS Drug Assistance Programs (ADAPs) - Henry J. Kaiser Family Foundation Fact Sheet] ] The primary activity of ADAP is providing FDA-approved prescription medication.Cite book | title = Caring for “Ryan White”: The Fundamentals of HIV/AIDS Treatment Policy | author = Jessamy Taylor | publisher = The George Washington University| date = 2005-08-22 | accessdate = 2007-09-09 | url = http://nhpf.ags.com/pdfs_bp/BP_RyanWhite_08-22-05.pdf]
The Ryan White CARE Act mandates that EMS personnel can find out whether they were exposed to life threatening diseases while providing care. The clauses protecting emergency personnel were removed by congressional staffers in a renewal of the bill. The reason for the removal is unclear; some allege the staffers removed the clauses protecting emergency personnel because they did not understand why they were in the original Ryan White act.Cite news | title = Ryan White Notification Law Repealed | date = March 2008 | author = Bryan Bledsoe | accessdate = 2008-04-11 | url = http://www.jems.com/news_and_articles/articles/Ryan_White_Notification_Law_Repealed.html]
The Ryan White Care Act was due to be reauthorized at the end of 2005, but Congress could not reach agreement on changes, and the act was extended for one year under the old terms. In 2006, the act was reauthorized for three more years, ending on
September 30, 2009with a funding level of $2.1 billion.
Prior to the reauthorization, the act allocated money based on the proportion of patients with full-blown AIDS in each region. The 2006 reauthorization changed this allocation mechanism to also consider the number of people with HIV infection.Cite news | url = http://www.washingtonpost.com/wp-dyn/content/article/2006/12/19/AR2006121900797.html | title = Bush Signs 3 Health Care-Related Bills | date = 2006-12-19 | author = Deb Reichmann | work =
Associated Press| accessdate = 2007-09-12] A significant portion of funding from the act is emergency relief for Eligible Metropolitan Areas. The 2006 reauthorization redefined EMAs as cities with a population greater than 50,000, instead of previous versions which required 500,000.Cite web | url = http://www.kff.org/hivaids/upload/7531-03.pdf | title = The Ryan White CARE Act: A Side-by-Side Comparison of Prior Law to the Newly Reauthorized CARE Act | work = Kaiser Family Foundation| date = December 2006 | accessdate = 2007-09-12]
* [http://hab.hrsa.gov/about/ The Ryan White HIV/AIDS Program]
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