- Huntington's Disease Society of America
-
Huntington's Disease Society of America is a national non-profit organization committed to finding a cure for Huntington's disease. Huntington's disease is an incurable degenerative disease of the nervous system that affects movement, thinking, and some aspects of personality. The disease is genetically transmitted. They perform extensive education outreach and support for patient's and families affected by Huntington's disease. The organization provides grants funding more than 40 research scientists and 17 Huntington disease laboratories. Grants from the organization have aided tests for early detection of the disease.[1] They also provide matching grants for local fundraisers.[2]
The organization was founded in 1967 as the Committee to Combat Huntington's Disease, by Marjorie Guthrie, whose ex-husband, folk singer Woody Guthrie, had died that year of the disease.
The HDSA has a Center of Excellence located at University of California, Los Angeles which is focused on treating people with Huntington's disease.
In June 2008 the HDSA initiated an annual award - the “Giving a Voice to HD” award, this recognizes an individual, or group, who have helped to raise awareness about HD in the community. The first award was to the HOPES project for providing easy to understand information about HD for all ages.[3]
References
- ^ Subtle Signs Can Help Predict Huntington's Disease Early
- ^ NewsTimes.com - Home
- ^ Miller, Marsha. "The 2008 HDSA Convention" Huntington’s Disease Advocacy Center, June 2008
External links
This article related to a non-profit organization is a stub. You can help Wikipedia by expanding it.
